I am a little late in responding to this, but I wanted to comment on Ronnie's question that he posed last week.
Q: If you could be born again, with what you know today, would you choose not to have Cystic Fibrosis?
A: No, (Bump) I think that CF is a "curse of a blessing."
This video shows CF from many different perspectives ... that of a healthy young woman, a man with a family and a career, a 20-something that is pre-transplant, another that is post-transplant and a family that has lost a son. While I support the CF Foundation 100%, I think this video really brings to the front that CF is no longer just a childhood illness.
But the question remains - is CF a curse? A blessing? A little bit of both? I believe that CF is a double edged sword. Yes, being sick, being in the hospital is not a fun part of my life. However, it's my life and I'm used to it. On the flip side of that coin, I have made some of my best friends and have some of my best memories with friends that have CF. Things that I never would have experienced had I not been "cursed" with this "blessing."
Sadly, Siobhan Ryan passed away from CF on June 24, 2008. Although she was listed for transplant, she did not receive one in time.
How Things Are
4 days ago